Clinical protocols
for rare disease patient care
RareCAP is a growing online repository of clinical protocols for the diagnosis and care of rare disease patients in a wide range of care settings.
Our Team

RareCAP is a collaborative effort between Children’s National Rare Disease Institute and Vanderbilt Institute for Clinical and Translational Research, with support from Takeda, to establish a digital platform to reduce barriers for clinicians, patients, and researchers in determining the appropriate diagnosis and clinical care for patients with rare disease.

RareCAP Platform Team
Jenny McCoy
Senior Platform Manager
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Medical Advisory Board
Alexis Ozden
Chief Medical Officer
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RareCAP was developed by VUMC in collaboration with Children’s National Hospital.
Supported by a grant from Takeda.
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