What’s special about RareCAP?
Rare diseases are being discovered and characterized at an astounding rate. Little is known about some of these rare diseases. RareCAP is working to become a clearinghouse of known treatment information for every rare disease.
How does RareCAP work?
Users can search the RareCAP database for a rare disease of interest, view and download protocols to address a specific patient need, and engage with the RareCAP community by commenting on protocols and responding to other user comments.
How can I contribute my expertise?
We encourage professionals with expertise in a rare disease to add their care management protocols to the platform. All new protocols are vetted by the RareCAP Curator before being published to the site. Contact the site via email for more information.
